Are Clinical Trials Right For You?
- Created on January 11th, 2009
- By The National Cancer Institute
Have you or a family member been treated for cancer and wondered if a clinical trial would have expanded your treatment options? If so, you may not have gotten too far past the talking or thinking stage because you simply did not know enough about clinical trials to make a decision.
Clearly, when making such personal choices about medical care, whether it is cancer or some other disease, you want to consume a lot of information and hold a vigorous discussion with your doctor to know what you are getting into. Not every procedure or test or pharmaceutical miracle drug is for everybody, but by the same token, if you do not take time to learn about the medical landscape, you may miss out on medical discoveries that could enhance your treatment and improve your chances of recovery.
Given the impact that cancer has on the African American community, it is so important to take the time to at least learn about cancer clinical trials and what benefits they may offer, even if you ultimately decide it is not for you or for your family member. Clinical trials are a subject of great sensitivity. Hesitation about medical testing of any kind is understood, especially in minority communities long disappointed by violations of trust related to health care and cultural appropriateness in the delivery of health care. Yet, it is critical when facing a disease as challenging as cancer that every patient know the full range of treatment options that may be available to them. With that said, you owe it to yourself and to any relative or friend you may be assisting after a cancer diagnosis to at least absorb the available information on clinical trials in case the provider mentions it or in case you want to take the initiative and get a professional opinion on whether a clinical trial would be a viable treatment option.
A good place to begin looking for information is on the Web at cancer.gov, the primary Web site for the National Cancer Institute (NCI). Here, you can uncover a wealth of consumer-oriented information about clinical trials: what types of trials exist, how to access these trials, what happens during a clinical trial, what questions to ask, and what the benefits and risks are for clinical trials. Especially helpful is NCI’s Clinical Trials Education Series, which is a neatly packaged collection of resources designed to educate cancer patients, health care professionals, and the general public about cancer clinical trials. You can order a DVD with the information or download materials from http://www.cancer.gov/clinicaltrials/learning/clinical-trials-education-series. Quite simply, you can learn at your pace and in the format that you find most comfortable.
Remember, when it comes to your health, knowing the facts and the options about treatment – not what trickles through the "urban legend" pipeline or what we know from hearsay – is critical… The only way of knowing whether or not a clinical trial is right for you or a relative is to educate yourself and get the facts.